Richmond – you said, we did

Find out how people from Richmond have helped transform the NHS in their area. You said, we did.

We’ve categorised your feedback under the headings below.

Feedback from Kingston & Richmond MG group.

You told us that:

  • The CCG should be aware of and share with GPs the group’s view that Graded Exercise Therapy (GET) is not a suitable therapy for ME patients, that it is currently under review by NICE and therefore should not be used GP practices.
  • The group wanted clarification whether ME is included as an “at risk” group for flu.
  • Members asked that the CCG ensure that all GP practices in Kingston and Richmond can access the “Purple book” published by the ME Association which is a clinical and research guide for those affected by ME/CFS.
  • The group would like to know how they can link with the Primary Care Networks (PCNs) in Kingston and Richmond.
  • The group would like more information about the eligibility criteria for non-emergency patient transport.

Our actions and plans in response:

  • We noted the group’s concerns about GET and that it is currently under review by NICE. Our position is that the current guidance still holds, until it is updated by the review.
  • We provided more information about the “at risk groups” for flu as set out by NHS England and encouraged them to talk to their GP or a community pharmacist about getting a flu jab.
  • We confirmed that we will be arranging for all GP practices in Kingston and Richmond to get the current edition of the Purple Book published by the ME Association.
  • Shared their feedback on referrals with the South West London e-referral team.
  • We provided information about the new PCNS in both boroughs.
  • We provided information about the eligibility criteria for non-emergency patient transport.

You told us that:

  • Would like to see a greater focus on health and care from conception to age 2 – the first 1000 days, as this is a critical period for laying down foundations of good physical and mental health.
  • It is not clear in the proposals how the actions identified will lead to the impacts listed for mental health e.g. will result in reduction of A&E attendance for mental health crisis by 50%.
  • It was suggested that dementia should be identified as a long-term condition rather than sitting under a priority for end of life care under Age Well. Others saw dementia sitting under Live Well and were keen to understand how people who fit in both life stages would be supported.

Our actions and plans in response:

  • The plan now references the first 1000 days with a commitment to develop a plan to support children, parents and families at this stage of life.
  • We agreed that we needed to be more explicit about the actions around mental health crisis and A&E and revised the plan to include an explicit action to redesign the mental health crisis model and pathway
  • For dementia, we agreed that it needed greater clarity and it is now a separate priority within the plan.

You told us that:

  • It’s really difficult for us to access support in this area, and we really need it.

Our actions and plans in response:

  • Working with the community centre and a local SEND charity, we have set up a parents’ co-production and information group. This will help the CCG to understand the difficulties facing parents so we can shape our services to work for people living in this part of the borough