Kingston – you said, we did

Find out how people from Kingston have helped transform the NHS in their area. You said, we did.

We’ve categorised your feedback under the headings below.

Feedback from Kingston & Richmond MG group.

You told us that:

  • The CCG should be aware of and share with GPs the group’s view that Graded Exercise Therapy (GET) is not a suitable therapy for ME patients, that it is currently under review by NICE and therefore should not be used GP practices.
  • The group wanted clarification whether ME is included as an “at risk” group for flu.
  • Members asked that the CCG ensure that all GP practices in Kingston and Richmond can access the “Purple book” published by the ME Association which is a clinical and research guide for those affected by ME/CFS.
  • The group would like to know how they can link with the Primary Care Networks (PCNs) in Kingston and Richmond.
  • The group would like more information about the eligibility criteria for non-emergency patient transport.

Our actions and plans in response:

  • We noted the group’s concerns about GET and that it is currently under review by NICE. Our position is that the current guidance still holds, until it is updated by the review.
  • We provided more information about the “at risk groups” for flu as set out by NHS England and encouraged them to talk to their GP or a community pharmacist about getting a flu jab.
  • We confirmed that we will be arranging for all GP practices in Kingston and Richmond to get the current edition of the Purple Book published by the ME Association.
  • Shared their feedback on referrals with the South West London e-referral team.
  • We provided information about the new PCNS in both boroughs.
  • We provided information about the eligibility criteria for non-emergency patient transport.

You told us that:

  • Children and young people told us that they would value some education around how to look after their own mental health and how to support their friends if they are having difficulties.
  • End of life care should be discussed openly and frankly – the plan should talk about death and dying rather than ends and ending.
  • There was a request to provide more detail about the actions to be taken to achieve the priority supporting unpaid carers.

Our actions and plans in response:

  • We have included actions working with young people to design and develop peer-led services to reduce involvement in risky behaviours and developing the emotional wellbeing programme in schools.
  • We have revised the actions around end of life care to reflect the request for more open and frank discussions.
  • The plan now includes more actions to support the priority for unpaid carers, including implementing Kingston’s carers strategy.

You told us that:

  • Parents told us: “We are desperate for help and we don’t know where to go.”
  • Children and young people told us: “Groups are great because they help you feel more accepted and less likely to take frustrations about loneliness out on yourself.”
  • Teachers told us: “A lot of teachers are really lacking confidence when it comes to addressing or talking about mental health issues with children and young people.”

Our actions and plans in response:

  • We are developing an online list of services which shows the support available in our borough.
  • We are developing a whole school approach which provides support to children outside of a medical environment.
  • We are working closely with schools to develop a whole school approach and to deliver mental health and wellbeing training to teachers and other staff.